It’s a small world after all…
Posted by Kristen on Apr 25, 2008 in Uncategorized | 12 commentsWe had our initial appointment with MD Anderson today. We haven’t had time to report about this but there have been so many connections made in the last few days. The nurse at our med unit in Bogota used to work at MD Anderson, Seth’s family has a friend who was treated there and then today half of the people we met on the hospital staff had a spouse from Colombia or other connections. It was comforting to have connections and know that even though our “home” is miles away (once again) there are still many reminders of home. We feel like we are home in some ways but feel so displaced in another way. We didn’t ever anticipate leaving so abruptly and have no idea what the future holds.
Our day with the doctors was amazing in the sense that they spent hours answering our questions and debating what would be the best course of action for Jackson. They did confirm that they are almost completely certain that Jackson has a form of sarcoma. Cancer of the soft tissue. The MRI’s from Colombia told them a lot and once again without a biopsy they confirmed cancer. Obviously, the growth could miraculously come back as benign but we spent 8 hours with doctors talking to us about the next steps for surgery, chemo and possibly radiation so no one is reassuring us at this point. Our little boy is so happy and appears to be healthy minus his “chubby knee”. We are shocked and have many decisions to make quickly. We came home tonight which was nice because we could have been admitted. We will start CT’s, bone scans, blood tests, etc on Monday. The scans will help to determine whether or not the cancer has spread to the lymph nodes, bone, etc. We did a chest x-ray that appears to be clear. You can be praying that this tumor in his knee is the primary source! Surgery will likely occur Thursday or Friday although that all depends on what avenue we decide to take with treatment.
We will keep you posted. We will be settling in this weekend and won’t likely have any news for a few days.
Thank you for your calls, prayers and support. It means so much.
thanks for the detailed update. we are continuing to pray and praise our Father. Give little Jackson a big hug from us.
Love you,
Edwards
thanks for the detailed update. we are continuing to pray and praise our Father. Give little Jackson a big hug from us.
Love you,
Edwards
thanks for the detailed update. we are continuing to pray and praise our Father. Give little Jackson a big hug from us.
Love you,
Edwards
We will definitely be continuously praying that his knee will be the only location where it is found. I am praying for strength and comfort for you two and for good spirits for your darling baby boy in these coming days/weeks. May the Lord be your Rock in these hard days.
We will definitely be continuously praying that his knee will be the only location where it is found. I am praying for strength and comfort for you two and for good spirits for your darling baby boy in these coming days/weeks. May the Lord be your Rock in these hard days.
We will definitely be continuously praying that his knee will be the only location where it is found. I am praying for strength and comfort for you two and for good spirits for your darling baby boy in these coming days/weeks. May the Lord be your Rock in these hard days.
Our prayers are continually with you for baby Jackson and for wisdom and strength for the two of you. Sending all our love…
Our prayers are continually with you for baby Jackson and for wisdom and strength for the two of you. Sending all our love…
Our prayers are continually with you for baby Jackson and for wisdom and strength for the two of you. Sending all our love…
Glad to hear more news. Sounds like you are in good hands and I’m so glad you have the support of both of your families close by. I’m praying also that the knee is his only location and that it is completely excised with no spread. Take care of yourselves and keep us updated.
Love,
Holly
Glad to hear more news. Sounds like you are in good hands and I’m so glad you have the support of both of your families close by. I’m praying also that the knee is his only location and that it is completely excised with no spread. Take care of yourselves and keep us updated.
Love,
Holly
Glad to hear more news. Sounds like you are in good hands and I’m so glad you have the support of both of your families close by. I’m praying also that the knee is his only location and that it is completely excised with no spread. Take care of yourselves and keep us updated.
Love,
Holly