We had our initial appointment with MD Anderson today. We haven’t had time to report about this but there have been so many connections made in the last few days. The nurse at our med unit in Bogota used to work at MD Anderson, Seth’s family has a friend who was treated there and then today half of the people we met on the hospital staff had a spouse from Colombia or other connections. It was comforting to have connections and know that even though our “home” is miles away (once again) there are still many reminders of home. We feel like we are home in some ways but feel so displaced in another way. We didn’t ever anticipate leaving so abruptly and have no idea what the future holds.

Our day with the doctors was amazing in the sense that they spent hours answering our questions and debating what would be the best course of action for Jackson. They did confirm that they are almost completely certain that Jackson has a form of sarcoma. Cancer of the soft tissue. The MRI’s from Colombia told them a lot and once again without a biopsy they confirmed cancer. Obviously, the growth could miraculously come back as benign but we spent 8 hours with doctors talking to us about the next steps for surgery, chemo and possibly radiation so no one is reassuring us at this point. Our little boy is so happy and appears to be healthy minus his “chubby knee”. We are shocked and have many decisions to make quickly. We came home tonight which was nice because we could have been admitted. We will start CT’s, bone scans, blood tests, etc on Monday. The scans will help to determine whether or not the cancer has spread to the lymph nodes, bone, etc. We did a chest x-ray that appears to be clear. You can be praying that this tumor in his knee is the primary source! Surgery will likely occur Thursday or Friday although that all depends on what avenue we decide to take with treatment.

We will keep you posted. We will be settling in this weekend and won’t likely have any news for a few days.
Thank you for your calls, prayers and support. It means so much.